Judith’s Story :
I started dancing at two years old, just as well my keen dance career and training helped so very much with my undiagnosed disorders. I always felt I had to work twice as hard as other dancers, but my career was my identity, dancer, dance teacher, award winning choreographer etc.
I had stared fainting at fifteen despite being as fit as an Olympic athlete, only in certain situations. I had a dreadful fall at eight months pregnant with my son, and was never the same again, with much worsening of my, what I now know to be, Ehler Danlos syndrome with Marfan’s features. It took a private consultation to find this out, and also that I have postural orthostatic tachycardia.
I have gone from being highly paid and admired for my body to being pitied and initially, disbelieved.
My son inherited the same disorders, being adopted I didn’t know I had, and I am currently struggling to get out of bed on a daily basis, once again.
